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Here Is Our Story

Every campaign starts from somewhere, and ours came from personal experiences. This is the story of how Fever Without Fear was found and why.

Behind the Campaign

Where it all started.

Our first experience

     It was a regular weekday night in 2019 when my younger brother experienced his first febrile seizure. He was just over 7 months old, battling a stubborn fever that wouldn’t go down. When the seizure began, my family and I panicked — we truly thought it might be the end of his life. We felt completely helpless — we had no idea what was happening or how to respond safely in such a terrifying moment.

More Than Reassurance — We Needed Understanding

      Over the next six years, my brother experienced a total of six febrile seizures — some of them occurring even without any obvious illness beforehand. My family made countless trips to the local children’s hospital and neurologists, desperately questioning doctors and specialists, searching for answers to why this kept happening.

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      Although he wasn’t diagnosed with epilepsy, we still held onto hope that there was something we could do to reduce his risk of having more seizures. But every visit to the emergency room ended with the same dismissive reassurance: that he would “eventually grow out of it.”

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      What we didn’t realize at the time was that it wasn’t a cure we were missing — it was the right education. The information we needed about febrile seizures was never offered to us, and that lack of understanding left us feeling powerless for far too long.

Why This Campaign Exists

      No family should have to face the fear and confusion of febrile seizures without clear guidance. Fever Without Fear's mission is to raise awareness, provide reliable information, and empower families with the knowledge we wish we had at the beginning. Because when you're prepared, you're not powerless — you're ready.

We Want to Hear Your Story

Inspire other families by filling out our form with your personal experience related to febrile seizures.

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