Esta es nuestra historia.
Toda campaña tiene un origen, y la nuestra surgió de experiencias personales. Esta es la historia de cómo se fundó Fever Without Fear y por qué.
Detrás de la campaña
Donde todo comenzó.
Nuestra primera experiencia
It was a regular weekday night in 2019 when my younger brother experienced his first febrile seizure. He was just over 7 months old, battling a stubborn fever that wouldn’t go down. When the seizure began, my family and I panicked — we truly thought it might be the end of his life. We felt completely helpless — we had no idea what was happening or how to respond safely in such a terrifying moment.
Más que tranquilidad: necesitábamos comprensión.
Over the next six years, my brother experienced a total of six febrile seizures — some of them occurring even without any obvious illness beforehand. My family made countless trips to the local children’s hospital and neurologists, desperately questioning doctors and specialists, searching for answers to why this kept happening.
Although he wasn’t diagnosed with epilepsy, we still held onto hope that there was something we could do to reduce his risk of having more seizures. But every visit to the emergency room ended with the same dismissive reassurance: that he would “eventually grow out of it.”
What we didn’t realize at the time was that it wasn’t a cure we were missing — it was the right education. The information we needed about febrile seizures was never offered to us, and that lack of understanding left us feeling powerless for far too long.
¿Por qué existe esta campaña?
Ninguna familia debería enfrentarse al miedo y la confusión que provocan las fiebres y las convulsiones febriles sin una guía clara. La misión de Fiebre Sin Miedo es crear conciencia, brindar información confiable y empoderar a las familias con el conocimiento que nos hubiera gustado tener desde el principio. Porque cuando estás preparado, no estás indefenso, estás listo.